Timeline 2568 พฤศจิกายน 14
MaeowMaeow Wisan, whose nickname I will abbreviate as MM had a hospitalization this weekend. It started with them checking their Blood pressure. The new app attached to the cuff via Bluetooth® to their phone read, “irregular heartbeat”. Consequently they retook it several times. The blood pressure readings were all over them map, one low, one high, and it felt like the other times she went to the hospital for BP. This time however, they were feeling just fine. The next morning they got two more readings. Unsure what to do they went to the minor “Doc in a Box” where they have gotten good service medical advice before. The doc hooked them up to an ECG and the doc said, “You won’t like this, but you should go to the ER”. They told them that they did like it. They had come for advice on what to do. They thanked them and got a ride.

On the better machine, the more wires it has the better, it became clear that the problem was Afib. 

MaeowMaeow has been admitted twice before for having their blood pressure all over the place and feeling bad. They also have been to the ER once more and had a doctors visit once. Each of these times, the vastly differing readings on the BP cuff should have alerted the MDs that the problem could be Afib. Each time they missed this. They assumed hypochondriac. 

The previous times MM was getting BP readings on her cuff that were really high and really low. The readings were inaccurate because of the Afib. Those readings were typical of what you would have if you have Afib. But MM said their blood pressure was going up and down. While not true literally, the message contained the truth. Instead of being considered it was written off. 

MM and I are disgusted by this. There is an arrogance in the belief that the non-expert has nothing to say, that their observations are of no value, that if they use the wrong language what they say has no substance.This arrogance is, in our experience epidemic in the medical field. MM should have been given a monitor years ago. If asked she could have said that she has had this feeling many times without going to the hospital or doctor.  

We have read and been told that by itself A.fib is not really dangerous, but its side effects are. It increases the chance of stroke between 1 and 10 times and can also eventually lead to heart failure. It is also progressive. A.fib episodes tend to bring about more episodes although it sounds like the progression is slow. 

MM’s parents ( the Rents )had the same disease as the MDs. But rather than having low respect for the utterances of patients, the parents had low respect for the utterances of their children. Further both the Rents and the MDs often believe that something is not realy until it is proven. They believe this is true, but only about things told to them by their children and patients respectively (maybe that should be “disrespectfully”) .

MM recently had the experience of having a doctor quote a medical journal article to them. When MM mentioned another part of the same article they rolled their eyes.  

Doctors that listen well and respect what they hear are worth their weight in gold, or at least silver, and parents that do the same make the world a better place.